Lymphedema: The Story of Anna Maisetti
- Mirta Cerioli
- Mar 5
- 4 min read
When it comes to lymphedema, there is still too little information. It is a chronic condition that affects millions of people, yet it often remains invisible to the world. That is why today, March 6, on International Lymphedema Day, we at Lebubè want to give space to a voice that has transformed her personal experience into a message of strength and awareness: Anna Maisetti.
Anna is a body-positive model, content creator, and activist. She has turned her leg into a symbol of representation and resilience, and through her work, she conveys energy, determination, and authenticity. From the very beginning, her story and her content struck me deeply because she talks about lymphedema with rare awareness—unfiltered but with a strength that leaves a lasting impact.
With her international community on Instagram (@stile_compresso), followed by over 27,000 people, Anna has created something far greater than just her personal experience: a safe space where lymphedema is no longer a taboo but a reality that deserves to be told with dignity, information, and even a touch of irony. Through her voice, she breaks stereotypes and offers concrete support to those in need.
So, I will now leave space for her story because it is testimonies like hers that help us take a step forward in raising awareness. – Mirta
March 6: International Lymphedema Day
March 6 is an important date for those, like me, who live with lymphedema. It is the International Day dedicated to this chronic and disabling condition, which affects millions of people worldwide.
For many years, lymphedema has been little known and often underestimated, but today awareness is growing, thanks in part to those who choose to share their stories and break the silence.
A Community for Change
My name is Anna Maisetti, I am 37 years old, a body-positive model, and a content creator. I founded the leading international community dedicated to lymphedema, which today has over 27,000 members.
This support network was born from my personal experience: after battling skin cancer at 22 and undergoing surgery that resulted in secondary lymphedema in my right leg, I realized how difficult it was to find information and references about this condition.
What initially started as a simple social media profile has turned into a movement—a collective voice that challenges stereotypes and spreads awareness. My goal has always been to talk about lymphedema in a new way, without pity but with irony, style, and determination.
What is Lymphedema?
Lymphedema is a chronic, disabling, and progressive condition that manifests as fluid retention (swelling) in one or more limbs or other areas of the body due to a deficiency in the lymphatic system.
In my case, it is classified as secondary because it resulted from surgery after my skin cancer diagnosis. However, in its primary form, it is classified as a rare disease.
Milan Fashion Week: A Runway for Redemption
This year, the message of inclusivity and acceptance resonated even more strongly. During the latest Milan Fashion Week, I had the honor of being one of 15 unconventional models chosen to participate in the first officially recognized inclusive fashion show by the Italian Fashion Council.
"The WOMderful Inclusive Fashion Show", organized by Benedetta De Luca and The Wom, was a historic event that brought diverse bodies and stories to the runway, proving that fashion can (and must) be truly for everyone. In that show, my colorful compression stocking was not just a medical device but a symbol of redemption—a way to show that lymphedema does not have to be hidden but can become part of our identity without defining or limiting us.
Self-Care: An Ally for Confidence
When facing difficult moments, taking care of oneself can make a big difference. Makeup, body care, and a well-curated outfit are not just aesthetic details but tools for empowerment. Looking in the mirror and feeling good about oneself helps build self-esteem and face each day with more confidence. Even on the toughest days, small gestures like putting on makeup or wearing something that makes us feel comfortable can have a positive impact on our mood.
Lebubè Hybrid Cosmetics: My Experience
I discovered Lebubè hybrid cosmetics last summer and immediately fell in love: a perfect balance between makeup and skincare! I don’t like heavy makeup, so in my free time, all I need is mascara, a touch of creamy blush, and a colored lipstick to feel instantly put together.
My favorite is the Lip and Cheek—super pigmented and versatile, perfect for lips, cheeks, and eyes. Just a little is enough to feel prettier!
The Fight for Recognition
Although lymphedema is recognized in medical and sports fields, in Italy, there are still many difficulties in having it acknowledged as a disabling condition. Too many people have to struggle with institutions that do not understand the real impact of the disease on quality of life. My mission—and that of the community I have created—is also this: to give a voice to those who too often go unheard.
Today, on International Lymphedema Day, my invitation is to not hide, to seek information, and to share. Because every testimony, every word, every small act of awareness can help change how the world sees this condition. Lymphedema is part of my life, but it does not define it. And today, more than ever, I can say that I have turned what seemed like a limitation into a symbol of strength.
Great article. I follow Anna and she is a great inspiration and so pretty!
I have primary lymfoedema, looking nice and well taken care of is important.
Beautiful clean make up helps!